Retinopathy of Prematurity
Chicago, IL
October 1999
All
preterm babies are at risk for Retinopathy of Prematurity (ROP), with low birth
weights being a second high risk factor. Kellisa was both and was diagnosed with
ROP. The ophthalmologist was following Kellisa closely as her eyes developed.
Out
of everything Kellisa went through in her first six months of life, her eye exams
were by far the most brutal, both for her and her parents. Imagine 3-4 people
struggling to hold down a sickly baby less than five pounds as she fought with
everything she had as the doctor pried her eyes wide open as they bulged from
their sockets. A device straight from a medieval torture device museum was used
to lock the eyes in the open position. I still have nightmares of the banshee
wails that came from her oxygen starved, underdeveloped lungs and there was
nothing I could do but hold her down with all my strength.
Above: NOT Kellisa
My
fatherly instinct was telling me to push (hit) the doctor and run out of the
hospital with Kellisa every time she went through this exam. There’s only one
reason why I never committed an assault and escaped with Kellisa. When Kellisa
was first diagnosed with ROP, we were told that she would go blind if it
progressed unchecked.
The
blood vessels in the eyes finish growing in the last few weeks before a full
term birth. ROP is when the blood vessels grow in a disorganized way after a
premature birth. In rare instances, the ROP can resolve itself. As this
disorganized growth progresses, it will cause the retina to detach leading to
blindness by 6 months.
ROP
is defined with 5 stages. The first two stages do not lead to blindness. Stage
3 is when the blood vessels attempt to grow into an area without vessels. This
will cause a buildup of oxygen and blood leading to detaching the retina. Stage
4 is when the retina starts to detach. Stage 5 is total retinal detachment
which will cause substantial or total vision loss.
When
Kellisa’s left eye reached stage 3 and her right eye entered stage 4, we were
advised that laser surgery was the only choice for Kellisa. A laser is used to
burn the ends of the blood vessels to stop their attempt at growth. Before
Kellisa was 5 months old, we signed the parent consent forms for Kellisa’s 5th
surgery.
The
surgery was a success as it stopped the ROP. Because Kellisa’s blood vessels
never grew to the outer ends of her eyes, Kellisa doesn’t have any peripheral
vision.
Stevie
Wonder is probably the most famous person who suffers from ROP.
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Eye Muscle Surgery
Jacksonville, FL
August 2002
Kellisa would have her second laser eye surgery to correct the
alignment of her eyes. Her eyes had become crossed. We tried to fix the problem
without surgery by patching her eyes; unfortunately this attempt did not work.
Without surgery, one of Kellisa’s eyes would become dominant and the other eye
would lose its ability to see as her brain would only use the best eye. The doctor would use the laser to adjust Kellisa's eye muscles so her eyes would be in alignment.
This
would be Kellisa’s 8th surgery and we don’t have any pictures to
share. However, two images are forever burned in my darkest nightmares. The
first is the blood tears that were flowing from Kellisa’s eyes when we first
entered her post-op room. The second and worst is the expression on her face.
She didn’t need to say a word; it was clear that she was asking her parents, “Why
and how could you do this to me?”
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